Radio Star Tiffany!

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Tiffany being interviewed by Buzz, the head radio host of Sirius XM The Highway!

Tiffany being interviewed by Buzz, the head radio host of Sirius XM The Highway!

This weekend, a friend took me to Nashville, again… two weeks in a row! I would move down there in a heartbeat! We arrived in Nashville last Thursday night, and, on Friday morning, we went to a little diner called Noshville. The food was really great, and I asked a receptionist there if any stars ever came to the diner to eat. It turns out Reba McEntire, Hayden Panettiere, a star of the hit television show “Nashville,” and Taylor Swift all frequent the restaurant; it is especially convenient for Taylor, whose penthouse apartment is right across the street! Friday afternoon, we went to Sirius XM The Highway, which is a satellite radio station located on top of the Bridgestone Arena. We were there for what is called Happy Hour, during which fans are able to come in and hang out in groups of about twenty. I was interviewed on the radio show, so listeners all over the United States and Canada heard me talk about being in Nashville to celebrate my college graduation. I also was able to share what I majored in during school and what I would like to do as a career. It was so cool being interviewed and just being in the studio and seeing all of the equipment; definitely something to check off my bucket list! I also took a picture with the radio host.

Loving Nashville!

Loving Nashville!

Later Friday night, I went to a concert at the Grand Ole Opry, which is like the Holy Grail of Country Music. If you go to Nashville, you definitely need to either go to a concert there or just take a tour! On Saturday, we went shopping in downtown Nashville all day, and, that evening, we went to Music Row and took pictures of all the different record label buildings. For dinner on Saturday night, I met up with a friend of mine with whom I went to college. She lives in Nashville now, and it was really nice to see her, as we hadn’t been together in nearly a year and a half. Sunday, we went on a tour of the Grand Ole Opry, and I was able to get a picture of myself on stage in the Circle, which is where all the stars stand when they play there. (I’ll post that when I finally get it developed!) I got maybe a total of ten hours of sleep the whole weekend, but it was definitely worth it!

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JMC Fest!

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10347541_10152084290671767_7708759974238682085_nWow, where to start? This weekend was definitely the experience of a lifetime! I traveled to Nashville with a friend from Tennessee, who, like me, is a huge fan of country artist Jason Michael Carroll. This weekend, the Country Music Association, or CMA, Fest was held in Nashville; we were able to go to three of Jason’s shows, so, instead, we called it JMC Fest! On Friday, we went to the filming of the live DVD shoot he was doing to help promote his new album, set to be released next month. (Make sure to check it out!) It was an experience I will never forget. The shoot was at Ocean Way Studios on Music Row, and before it began, he and his band did a meet-and-greet backstage. I also got to meet several people from his management team and connect with other members of his fan club; we all hung out and took several pictures with Jason. He and I even took another goofy picture! The DVD shoot itself was so much fun! In between songs and takes, he and the band were telling jokes and having fun with the audience. It was so cool seeing all of the cameras and lights. We were there for nearly five hours!

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Adding to the collection of Tiffany and JMC goofy pictures!

After the shoot, I got to hang out with Jason and the band for a while longer; we even took a selfie. We were some of the last people to leave, and Jason got some of his band members to help me down the steps in my wheelchair! I told them I felt like a queen, and the picture is priceless. Later that night, I had a front row seat to see him play at the Wild Horse Saloon, which is a really famous spot for concerts in Nashville, and the following day, I saw him play on the Riverfront! Then, before making the trip home on Sunday, I went to the convention center and got to talk to him for a few minutes. While there, I also met country artists Ashton Shepard and Trent Tomlinson. I can’t wait to see Jason again next month at the Crawford County Fair in Cuba, Missouri! This Thursday, I will be going back to Nashville with my friend to celebrate my graduation. Needless to say, I LOVE Nashville and country music! What are your favorite memories from trips to Music City?

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Finding Empowerment By Taking the Stage

Emily's "I'm a Girl" original lyrics and talent show program

Excitement rippled through the room when my Girl Scout troop leaders announced that the theme of the district-wide talent show would be a salute to women, or “girl power.” This was a popular idea when I was young, largely because the Spice Girls, who used it as one of their catchphrases, were incredibly famous at the time. However, as much as I loved the Spice Girls, “girl power” held a deeper meaning for me. I was born with a physical disability called Larsen syndrome, so, at barely eight years old, I was already aware that being a woman with a disability is all too often viewed as a double disadvantage by society. I wanted to do my part to change that and to prove that, even as a young girl, there was power within me.

The talent show presented the perfect opportunity to let out my budding voice for advocacy. I can still remember the feeling of words taking shape in my mind as I thought about the message I wanted to share with the audience. Then, one evening, I sat in my room and wrote my thoughts down until they became lyrics to a song that I titled “I’m a Girl.” It begins: “I’m a girl / Watch me dream / One day I’ll be what I wanna be / And nobody in the world can stop me. / I stand proud, I stand strong / And I will live through right and wrong.” As the song continues, I express gratitude for amazing female role models including Susan B. Anthony and Oprah Winfrey. I also assert that girls have the potential to grow up and do anything they set their minds to, from being a carpenter, to a baseball player, to President. (Hey, I dreamed big!)

When the night of the talent show arrived, I was a ball of energy and nerves. I had never performed anything in front of an audience before, let alone something I had written. But, even though I was quite young, I knew that in my own small way, I was contributing my voice to two causes I believed in – women’s rights and disability rights. So, when it was my turn to sing my solo, I looked deep inside myself and called on all the confidence I had. Then, I got on stage and sang my heart out. Today, as I look back on this experience, I realize it was just the beginning of my lifelong journey focused on taking pride in who I am.

I’m 22 years old now, but the message I want to share remains the same as it was so many years ago during the talent show. Neither disability nor being female is a weakness; girls and women of all abilities and ages have the right to feel empowered. I always remind myself that one person has the power to make changes in society, and, together, the positive impact we can have on the rights of women with disabilities can be incredible. By embracing confidence and taking the stage, we can show the world that being disabled and being female are not what make us weak, but rather what make us strong and unstoppable.

– Emily Ladau, WordsIWheelBy.com

unnamed 2Special thanks to our guest blogger, Emily Ladau, for this post! Emily is a passionate disability rights advocate whose career began at the age of 10, when she appeared on several episodes of Sesame Street to educate children about her life with a physical disability. In the years that followed, Emily took on leadership roles in many advocacy initiatives. She graduated summa cum laude with a B.A. in English from Adelphi University. Immediately after graduation, Emily was selected to participate in the prestigious American Association of People with Disabilities internship program based in Washington, D.C. Since completing her internship in August 2013, Emily has been both employed and volunteering with multiple organizations to foster opportunities and develop resources for disability community, as well as to encourage people with all types of disabilities to develop their inner voice for advocacy.

Emily blogs at Words I Wheel By about her experiences as a disabled young adult, challenging people to consider all aspects of the disability experience in new ways. She loves forming new connections and invites you to connect with her via Words I Wheel By on Facebook and follow her on Twitter @emily_ladau.

Songs, Signings, & Selfies

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imageThis has been one eventful week! On Wednesday, one of my friends and I saw country music artist Eric Paslay in concert. One of our local country radio stations invited him to play at a venue called Wild Country in Collinsville, IL. The concert was awesome! It was the first time I had ever seen him play live, and I was able to sit in front so I could see well. Eric played a couple of his new hit songs, like “Friday Night,” but what really surprised me the most was learning that he actually wrote Jake Owen’s hit song “Barefoot Blue Jean Night” and Rascal Flatt’s hit song “Rewind!” Eric even played both songs at the show. Right as the show ended, before he walked off stage, he gave me his guitar pick; that made me feel so special! Shortly after the concert, he took pictures and did a signing with all of his fans. The venue let me go first because there were so many people in line; this made things a lot easier, as it was hard for me to get through with my wheelchair. Eric was so sweet! I got his autograph, had my picture taken with him, and told him thank you for the guitar pick. The radio station even took a picture their camera to put on their website! We stayed for another half an hour, and, as we were walking out, Eric was also walking out to his tour bus! He ended up taking another picture with me, because the original one I took with my camera didn’t turn out; this time we took a selfie! I was so happy! This Thursday, I am leaving for my first of two trips to Nashville this summer, so I am totally stoked! I’ll give you a sneak-peak of next week’s post: it will be titled “JMC Fest!” Stay tuned to find out why!

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May 21st: Celebrate the Past, Present, and Future of Miss Amazing

12524490143_c5c9225c01_bThe first Miss Amazing Pageant was held in 2007 in a small youth center with 15 participants. Little did anyone know that this event would blossom into a non-profit organization that coordinates Miss Amazing Pageants in 25 states and produces new media initiatives like the Real Girl Series. Where we’ve been, where we are, and where we’re going to go- it is all thanks to the people who have given so much time and passion to the Miss Amazing mission and we need a day to celebrate that. Tomorrow is that day.

May 21st, midnight to midnight, we’re honoring all of the Miss Amazing Pageant participants for believing wholeheartedly that their abilities are limitless, vast, and amazing. We’re applauding the friends, family members, and community supporters in the audience at the Miss Amazing Pageants. We’re thanking the sponsors who value the abilities of all people. We’re commending the volunteers for their dedication to a better world. Here are all of the ways that we will be celebrating:

  1. Starting at midnight, we will be calling all Miss Amazing enthusiasts to support Miss Amazing programs through Omaha Gives, which is a 24 hour charitable giving challenge that celebrates nonprofits headquartered in Omaha, Nebraska. This giving challenge is fantastic because it gives Miss Amazing the chance to receive a matching donation and other bonuses! So cool! You can donate securely online at omahagives24.org. If you are unable to give to Miss Amazing tomorrow, have no fear! You can support Miss Amazing by spreading the word and cheering us on.
  2. On every even hour starting at 12 am, we will post a highlight on our Facebook page of a Miss Amazing Pageant participant who has made an impact in her community.
  3. On every odd hour starting at 1 am, we will post a highlight on our Facebook page of a Miss Amazing Pageant volunteer who has been exceptionally hard-working and positive.
  4. At 12 pm, 4 pm, and 8 pm, we will be randomly choosing one person who has liked our hourly Facebook posts to receive a piece of Miss Amazing Inc. merchandise.

We are looking forward to celebrating the past, present, and future of Miss Amazing with you! Whether you contribute through the Omaha Gives website or share information through your Facebook, Twitter, or Instagram account, you can honor what we’ve accomplished and assist us in making an even bigger impact.

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Continuing the Graduation Celebration!

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On Friday night, a bunch of my friends came down from school and took me out to dinner at the Spaghetti Factory to celebrate my graduation. At first, it took us forever to get in, because we couldn’t find a ramp for my wheelchair and the cobble stones made it extra bumpy. Fortunately, my friends and I found humor in the situation; it is all part of the adventure of being in downtown Saint Louis! Dinner was amazing, and it was so great to catch up with everyone. It meant the world to me that they came all the way from Edwardsville just to take me out to dinner and help me celebrate! After dinner, I was supposed to go home, but we got a little lost because of all the construction. We decided that I would just go home with my friends in Edwardsville and spend the night there; I was so excited for our sleepover, and, while I was there, I also was able to help dog-sit! It was actually very convenient, as I was planning to be in Edwardsville the next day anyway, because my parents and I were taking my professor and his wife out to dinner to thank him for being such a great mentor and to celebrate my graduation. My first weekend as a college graduate was great!

College Graduation, 8 Years in the Making!

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10155287_623397994417711_2733768992080129392_nIt has been a busy couple of days, to say the least! I graduated college on Saturday with a Bachelor of Science in Speech Communication! After eight years of college, I finally achieved a major dream of mine by getting my college degree! It has taken a lot of hard work and determination, but I finally did it. 

I loved college, and I already miss it, especially my friends and teachers! Luckily, I will still get to see them fairly often. Graduation was exciting and bittersweet. Many of my friends and family came to support me, and several of my friends actually graduated with me! When I put my cap and gown on, I just took a deep breath. I felt like a weight had been lifted!

The next few weeks are going to be very exciting. I am going to Nashville for a few weeks, and I’m planning a big graduation party to celebrate! I am also working really hard to find a full time job. I know that, if you put your mind to it, you can accomplish anything, even if you have a disability! That is what I try to tell myself everyday. By no means is it easy; I have had to overcome a lot of adversity in college, and still face obstacles on a daily basis, including all of my physical challenges with my Cerebral Palsy and other learning disabilities. Don’t let it keep you from following your hopes and dreams! Many more exciting things are happening soon, so stay tuned!

Make Your Own Chick in the Cup!

Spring has sprung, and, just in time, our crafting expert, Bailey, is back to teach you how to make one of her favorite crafts, Chick in the Cup!

Supplies Needed:

  • 1 clear plastic cup
  • 1 toilet paper roll
  • Shredded, crinkled brown paper
  • Yellow tissue paper
  • Orange construction paper
  • Tape
  • Scissors
  • Black marker

Step One:  Fill the clear plastic cup with the shredded brown paper and set aside.

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Step Two: Cut the toilet paper roll in half to make it shorter.

Step Three: Cut the yellow tissue paper in a straight line, making a rectangle that is slightly taller than the toilet paper roll and long enough to wrap around it.

Step Four: Tape one edge of the yellow tissue paper to the toilet paper roll. Finish rolling it up and tape it at the other end, also.

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Step Five: Tuck the extra tissue paper into the top and bottom of the toilet paper roll.

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Step Six: Cut a triangle shape out of the orange construction paper for the beak, and tape or glue it onto the toilet paper roll.

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Step Seven: Use a black marker to draw on the chick’s eyes.

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Step Eight: Get the yellow tissue paper back out, and cut out two wings and some hair for your chick. The clue is to crumple the tissue paper up and mess with it to get your wings to look how you want them to look. Stick the chick’s hair in the top of toilet paper tube, and tape the wings to the sides.

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Step Nine: Stick your chick into the cup!

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 I hope you had fun making this craft; I sure did!

Celebrating Heather: Part 2

InterviewAs I have sat and thought about what to write about the life of my daughter, Heather McLean, I am overwhelmed at all the thoughts that come to mind. How can I possibly put into words how magnificently she lived life?

The first time I tried to write, I was overwhelmed with emotions and just couldn’t do it. I took a break and walked outside and sat on my porch. The moment I sat, a beautiful hummingbird came looking for her feeder; she just fluttered right in front of me. That was a gift to me. I was sent that hummingbird, that was a message, “Mom, I’m alright, I’m with Jesus now.” I can’t even begin to tell you the Peace that washed over me.

During her first 5 years, it seemed as though she could not stay out of the hospital. It was our second home back then. Thank God for the Ronald McDonald House! When she was 5, I had taken her to the doctor, as something just wasn’t right. At that age, she was the tiniest of all her classmates. She was still the same size as she was at 2. I took her baby book in as reference. At that point, the doctor referred her to a specialist. She had been diagnosed at 6 months with Optic nerve hypoplasia, which means her optic nerves did not develop. We were told she was blind and given a list of all the things she would NEVER do, but she did everything on that list (except drive a car, but she could sure drive the golf cart!) The endocrinologist diagnosed her with septo-optic dysplasia, or DeMorsier’s Syndrome.

Heather was also developmentally delayed. At 25, she still had the heart of a child. Pure. Innocent. Genuine. Heather had dreamed of being a missionary since she was a little girl, but she thought she could never do the work because she couldn’t go to a third world country. I told her she could be a missionary right here at home, and she did just that.

Heather was crowned the first North Carolina “Miss” Miss Amazing Queen in 2013. She wore her crown and sash with pride, and she used that platform to show the love of Jesus. Her face that night when she was told she was queen was priceless. She earned that crown! She enjoyed Nationals so very much. Though we initially thought it would be impossible for us to make it to Nationals, I am thankful for the bad situation, because, had it not happened, the four of us would not have attended. God gave us an incredible experience with Heather, days that we will never forget. It was a truly special, amazing experience that we will cherish forever. Because of the situation, Heather chose to sing “What Faith Can Do” by Kutless for the talent showcase. She knew Faith was all we had to get there, and Faith was enough!!

10155930_783707091654348_177000617_n copyDuring her reign as a Miss Amazing queen, Heather organized two events. The first, Warm Hearts, was for local children, and she collected items such as gloves, mittens, and scarves to help keep them warm. She also organized Stockings of Love for the Lewis Rathbun House, which is much like the Ronald McDonald house, in Asheville for the families in the house who had loved ones in the hospital at Christmas. We know what it is like to be away from home and family and friends during the holidays, so she wanted to do something special to show them they were not forgotten. She was also invited to be the Grand Marshal of our hometown parade, which was an amazing experience for her.  When she rode through town and they made the announcement that she was the Grand Marshal, the cheers and clapping began. I remember Kristie telling me, “She leaned down and said, ‘They are doing that for ME??’” Yes, my precious, they did that for you! When she got to where we were, as her Mother, my heart swelled with love, seeing her smile and her glow. I did not want that moment to end for her. As we hollered and waved and clapped for her, I gathered the children with me and we began running along with the car yelling her name to see her smile. We ran to the end.

Heather’s desire in life was to help people. It didn’t matter how; she would help through a kind word, encouragement, an offer to pray for you, or those awesomely wonderful hugs she gave! She was the best hug giver in the world! Heather loved with all of her heart. She forgave with all of her heart. Heather’s life wasn’t easy, physically or emotionally . People made fun of her. People took advantage of her. People tried to exploit her. I will never forget the day when she was in third grade and she came home in tears, as kids were making fun of her. She knew I got upset and said to me words I will never forget, “Mom, it’s okay, because I forgive them.” She had a heart of forgiveness. It didn’t matter what you did or didn’t do, she forgave quickly and completely. She loved completely and unconditionally. She never gave up on people.

I have started Heather’s Faith Fund. I don’t want her to be forgotten. I know the life she lived will continue to touch souls for Jesus. This is being done to honor and remember all she was and all she did. I want to continue her legacy of “What Faith CAN Do!” We will continue to honor her through helping other people. The first thing we have done is raising the funds to cover all of the North Carolina Queens’ registration fee for Nationals. We raised the $600.00 in one week! Thank you Lord!! We will do our best to see to it that all 6 Queens make it to Nationals!! I would also like to be there, in her memory.

Heather passed just two weeks before she was to crown the next queen. So close. I was given the honor of crowning the new queen, Miss Leann Huff, who happened to be one of Heather’s very best friends. It was truly an honor to do that. Kristie did a beautiful job memorializing Heather. Her song “What Faith Can Do” was sung by Kristie’s mother and brother. It was emotional but oh, so beautiful. The NC Miss Amazing will be offering a scholarship in Heather’s memory to a Murphy High Senior. Isn’t that awesome!? Most people pass away at their lowest, sick and diseased. But Heather passed away at her highest! This last year was her best year ever! I am so thankful for that. Although we experience the sting of death, we have also been blessed beyond measure. Yes, blessings abound even through death.  Yes, God is still good, even through death. Yes, God comforts us, even through death.

I would like to pose a challenge to whomever reads this… If you haven’t gotten to know someone who is different,  go get to know them! These special children, young adults, and grown people have more to offer than you could ever imagine. It would bless you tremendously if you invested just a small amount of time with someone different. It can get very lonely being different. People are afraid of what to say. Don’t be. Just go talk to them like you would anyone else. You will ignite a glow in them that will ultimately bless you. Go get blessed!!! Go…. I promise you won’t regret it!

I’ll leave you with Heather’s famous words:

“Everybody IS Somebody; We ALL Matter.”

Crowning

Lovingly written by Tracey McLean

Mother of Heather McLean, North Carolina’s First Miss Amazing “Miss” Queen 2013

~ October 24, 1988 – March 22, 2014 ~

Road Trip & Concert Adventures: Part 2

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Concert selfie!

Concert selfie!

Welcome back for Part 2 of my Jason Michael Carroll concert road trip! Shortly after my backstage meeting with Jason ended, it was time for him to take the stage with his band! I was able to sit right up in front with my wheelchair, and I was so grateful because I was able to see everything. The whole show was absolutely amazing and so energy packed! Of course, I was screaming, dancing, and singing the entire time! I love all of his songs! Everything he played that night was awesome! Some of his hits include “Alyssa Lies,” “Where I’m From” and “Numbers.” I also loved hearing some of his new music that night that will be included on his upcoming album! During the show, he grabbed my hand a couple of times. Then, during one of his songs, he grabbed my camera and took a picture of himself on stage with the microphone in his hands! I was so excited!

Meet-and-greet!

Meet-and-greet!

After the show was over, Jason did a meet-and-greet with his fans! When I went up to him again, he had a huge smile on his face and gave me a hug! He signed my CD and took a few more pictures with my camera. They also had a photographer there taking pictures for everyone, so that was really awesome! I can’t wait to see the pictures! Before Jason had to go talk with the next person, he gave me another hug and told me that he was thankful that I was able to come to the show and that it meant a lot to him! I didn’t realize it until my friend told me later, but he also helped me push my wheelchair for a bit as I was leaving! I was able to get pictures with his guitar player and drummer and talk to them for a couple of minutes, too! Everyone was so nice and wonderful! I can’t wait to see these guys again in Nashville in a month! My friend and I didn’t get back to the hotel until around 1:30 am, but fortunately, by then, we had Taco Bell with us! Our road trip was an absolute blast!

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